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Post details: 2/22/10 - Semi-Annual Update - All is well

02/27/10

Permalink 01:55:15 pm, Categories: Treatments, 467 words   English (US)

2/22/10 - Semi-Annual Update - All is well

February 2010 Semi-Annual Update - Unremarkable....

All is well - scans were unremarkable/unchanged/etc... The doc was pleased (as were we).

I had a CT scan on Friday (2/19/10), but no PET scan this time. I figured insurance would start to question/push-back on the PET scan, as they're quite expensive, and as I'm 4 years out from treatment, there's a point where they'd want to have something evidence itself in a dr visit, or the CT scan. Really can't argue with that... So, CT scans they were, with contrast, and had pre-med of 3x50mg Prednisone, and took 3x25mg benadryl. The scans went uneventful - quite a bit faster than having the CT and PET to do.

The doctor visit involved the usual wait (north of an hour), but I got to see Mary and Alex (both nurses that used to be on the Chemo floor, and are now in Dr. Goy's staff). Coleen and Dr. Goy are doing well, and it was great to catch up. Goy's been busy, but still does 2 days a week seeing patient appointments, and of course makes rounds, etc. He's Deputy Director of the Cancer Center, and Chief of Lymphoma, and a big advocate of administrative resources still maintaining a hand's on approach.

I'm still going for 6 month checkups - which is good, and I'll go back in September, after all of the fun of summer!

I talked to Jim (cell-mate), and he's doing well - another clean visit, and we're of course thrilled to hear. Steven's doing well, and I need to sync-up with him.

My firm has an annual appeal where you can donate funds to various charities (comes out of your paycheck, and some matching of funds takes place), and the Hackensack University Medical Center is one of the choices, so I picked that, specifying the Cancer Center. I sent a note to some colleagues at work, nothing that if they didn't have any charity choices of their own, that they consider this one when making their election. I know most everyone has their own issues/challenges to work with, but in the event they were looking for something to contribute to (outside of the generic firm's choice - a good charity of course), they consider this one. I raise this issue on the blog, as I'd (1) encourage readers of this to do the same if they don't have any specific choices in mind, or (2) you may want to encourage others to donate to whatever facility you attended. (Seems it's when you were first starting to work that you didn't have as many issues, or compare as many pains with friends/colleagues, that you simply chose the generic charity - years later, there seems to be an abundance of worthwhile choices that have a personal attachment!)

Many thanks for looking, best wishes to all!
John

Comments:

Comment from: Alex [Visitor]
Great stuff. Keep it up.
Permalink 03/16/10 @ 13:43
Comment from: Caio [Visitor]
Hey John,

I~m a fellow MCL patient from Brazil and I would like to say that since I found out about my condition I started following your blog (aug/2008 that was).
Since that, I did all the chemo like you did (exactly the same protocol)and also a bone marrow transplant. I just did my 1 year check and everything is perfect. I would like to exchange some experiences with you (if you feel like that, of course) because there are always things to talk about that are interesting, like new treatments, nutrition and so forth. Also, would like to say that your blog always served to reasure myself that it was possible to get cured and live a normal life again! Thanks!
Caio


From John (8/20/10):
Caio,
Great news on your treatment and success! The bone marrow transplant must have been challenging - but certainly has some excellent results. I'll contact you offline, but am certainly open to discussion, as I think there's real benefit in that. I've not been as active on the various MCL forums - just need some time away from it I suppose - a bit of normalcy, but I agree there's benefit to keeping aware. And many thanks on the kind words; as you can imagine, that's incredibly humbling to hear, and extremely rewarding.

Best,
John
Permalink 07/19/10 @ 18:02
Comment from: Jim [Visitor]
John,
Great to hear, thanks for keeping us posted, and Please keep up the good work!
Jim
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