MCL Sites:

ACOR  –  Association
of Cancer Online
Resources
   acor.org
   acor listserv

List Server at UCSD.edu -
  listserv@ucsd.edu

MCLaid -
   MCL Aid

Misc -
   CancerBACUP
   Lymphoma Info

Archives for: July 2014

07/14/14

Permalink 09:28:38 pm, Categories: Treatments, 463 words   English (US)

May, 2014 Update - delayed entry! - ALL IS WELL

Apologies to those following the blog for my delayed entry. I met with Dr. Goy in May, and all was well! Back again in a year. Many thanks for checking in!

I really hope that anyone that has MCL, and that looks to this blog, can find hope and a positive outlook for fighting this. I'm now 8+ years out, and that's from Stage 4B diagnosis! I did 8 rounds of R-Hyper CVAD, had multiple transfusions, took a number of trips to the Emergency room for fevers, etc. but I did it - with the help of friends and family, and nurses and doctors. And i still say that it really wasn't that bad!

I also know there are many that have had a harder time at it, and that have relapsed and are working very hard to beat this; and for those friends, I pray for your remission. Jim - this is particularly for you - keep at it, you are an inspiration to many.

Finally, there are some that have succumbed to MCL, or MM, or some other cancer, and for those friends, and their family, our deepest condolences, thoughts, and prayers. Tina (RIP), Andy and family, this is for you, and we're blessed to have gotten to know Tina as much as we did.

From Tina's (and Adam's) service:

Do you live your DASH?

I read of a man who stood to speak
At the funeral of a friend
He referred to the dates on her tombstone
From the beginning...to the end.

He noted that first came her date of birth
And spoke the following date with tears,
But he said what mattered most of all
Was the dash between those years. (1934 -1998)

For that dash represents all the time
That she spent alive on earth...
And now only those who loved her
Know what that little line is worth.

For it matters not, how much we own;
The cars...the house...the cash,
What matters is how we live and love
And how we spend our dash.

So think about this long and hard...
Are there things you'd like to change?
For you never know how much time is left,
That can still be rearranged.

If we could just slow down enough
To consider what's true and real,
And always try to understand
The way other people feel.

And be less quick to anger,
And show appreciation more
And love the people in our lives
Like we've never loved before.

If we treat each other with respect,
And more often wear a smile..
Remembering that this special dash
Might only last a little while.

So, when your eulogy's being read
With your life's actions to rehash...
Would you be proud of the things they say
About how you spent your dash?

Author Linda Ellis

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My Treatment Entries

I'll review the treatments I'm getting, what happens, and how I feel. This should help let others know a little about what to expect. NOTE - everyone reacts differently.

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