MCL Sites:

ACOR  –  Association
of Cancer Online
Resources
   acor.org
   acor listserv

List Server at UCSD.edu -
  listserv@ucsd.edu

MCLaid -
   MCL Aid

Misc -
   CancerBACUP
   Lymphoma Info

Archives for: May 2013

05/23/13

Permalink 09:58:33 pm, Categories: Treatments, 91 words   English (US)

MCL Info

I've put this in Background, and in Treatments, as it's a great link.

LLS created this excellent reference item on MCL, with a great note on treatment - "There has been noteworthy progress in the treatment of
MCL over the last decades":

http://www.lls.org/content/nationalcontent/resourcecenter/freeeducationmaterials/lymphoma/pdf/mantlecelllymphoma.pdf

Thanks to all of the doctors and nurses researching and trying, for all of the patients undergoing clinical trials, for the caregivers that keep us going, and for the support, thoughts, hopes and prayers of friends and family.

Permalink
Permalink 09:35:53 pm, Categories: Treatments, 173 words   English (US)

Hackensack University Seminar on Cell Therapy and Interventional Immunology

My oncologist, Dr Goy, is hosting a seminar at Hackensack University Medical Center, on Cell Therapy and Interventional Immunology.

The summary from the site is:
Join us for this exciting program with the nation’s top cancer experts for a review of the latest developments and implications of cell therapy and interventional immunology in the oncology setting for solid and liquid tumors.

There is a need to bring clinicians and scientists together to collaboratively discuss innovative translational research programs and controversial management and treatments to improve efficacies in hematological/solid malignancies. This conference is designed for hematologists, oncologists, physicians, scientists, and medical professionals involved in cancer research, diagnosis and treatment.

While this is clearly not a layman's seminar, I encourage anyone that's reading this, that has an oncologist, or knows of a research scientist, etc working in this space, to attend, as these are the targeted treatments that we need to treat, and cure cancers.

The link is:
http://www.jtcancercenter.org/site/event-view-page/cell_therapy_and_interventional_immunology_current_developments_and_implica

Permalink

05/20/13

Permalink 08:40:27 pm, Categories: Treatments, 234 words   English (US)

5/20/13 Update - All is well (7+ year remission)

We (Chris and I) visited Dr. Goy today, and all is well!

We had the reports from my recent CT scan, so we questioned sites that remained unchanged/unremarkable, making sure we understood what everything meant. I also had a colonoscopy and endoscopy recently, as MCL tends to invade the gut, and i hadn't had a scan since 2007 - those were clear, and Dr. Goy was happy, sending me on my way for another year. But not before we talked about current treatment protocols, and the challenges for patients, as there still isn't one standard treatment. The protocol I received was R HyperCVAD, and has been proven to be quite effective, especially in aggressive forms of the cancer.

I have friends that I've met through this journey that have been treated, and have relapsed, and are seeking new treatment options, including Stem Cell Transplants, which, while very challenging, have amazing results. Several of these friends have already taken clinical trial drugs, and for that, I'm ever so thankful and in awe. It's the drugs that are currently in clinical trials that we hope will bring a cure to many of these diseases.

Many thanks for all the thoughts, prayers and support from friends and family. Please keep it up, it's surely working; and please keep in your thoughts and prayers those who have passed, and those who continue to fight.

Have a great summer!
John

Permalink

My Treatment Entries

I'll review the treatments I'm getting, what happens, and how I feel. This should help let others know a little about what to expect. NOTE - everyone reacts differently.

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