MCL Sites:

ACOR  –  Association
of Cancer Online
Resources
   acor.org
   acor listserv

List Server at UCSD.edu -
  listserv@ucsd.edu

MCLaid -
   MCL Aid

Misc -
   CancerBACUP
   Lymphoma Info

Archives for: September 2005

09/27/05

Permalink 11:35:46 am, Categories: Hospital, 630 words   English (US)

Note from a MCL'er

This is a note from an MCL'er (Steve Meyer) - that had was just about to get a Stem Cell Transplant. His message is clear, positive, and very encouraging. His message resonates with me, and I think it captures a lot of what those of us going through this (cancer in general) feel.

I am not happy to have this disease, nor is anyone who has it.
> Chemotherapy is not a refreshment, Bone Marrow Transplants are less fun
> than going to the lake in the summer. And having one's life ripped apart
> by a disease that has historically killed all its victims is not my first
> choice.
>
> On the other hand when you are surrounded by people who Love you, people
> who pray for you, people who bring you meals, send you cards, rake your
> leaves, cry with you, laugh with you, do your chores for you, shovel
> your snow all winter, cut your grass all summer, come over on Sunday to
> watch football with you, call you on the phone, pick up your medicine for
> you, drive you places when you can't, offer you their homes, offer
> support to your husband or wife, offer
> support to your kids, offer support to your healthy parents, offer
> support to your brothers and sisters, come over to keep you company,
> take you out to dinner, bring you books,cd`s,tapes,loan you their lap
> top, offer their friendship and Love.......
>
> When your kids tell you they Love you, again and again and again and cry
> at the thought of losing you When your wife or husband tells you they
> Love you even when you act like an idiot and they cry themselves to sleep
> at the thought of losing you. When you see your parents eyes at the
> thought of losing a child to this
> disease and they say " I wish it were me" and they mean
> it....................................
> When people you`ve never met pray for you, send you mail, encourage you,
> meet you for dinner, when the Doctor weeps for you cause he wishes he
> could do more.................... When the pain gets so bad it takes away
> your breath, or you get so sick you think you`re gonna die. I`ll tell you
> what I do. I thank God for my life just the way it is! I have had a good
> life, and I intend to live for many years to come. I plan on seeing my
> Becky grow up. Today she was the happiest little girl in the third grade,
> and so proud to read her grades one by one to her dad, who she has no
> doubt Loves her with all of his heart. I plan to see my twelve year old
> son's penmanship improve even if it takes forever and someday he will
> beat me in chess. I plan to see my my sophomore in college daughter
> someday grow up the rest of the way and get married and give me
> grandkids. I plan to see my parents finish their lives with their son
> alive, and I`ll bury them when they die. I plan to see my beautiful wife
> grow old, get grey hair, and sag, so I can Love her more then than I do
> now, and we can retire to Florida.
>
> Did we all get a bad break? Yes
> Do we have a right to complain? A little
> Would I change my life if I could? Never
> I`m glad you asked the question, and I pray that you and everyone else
> with this disease gets cured, and those who have died from this disease
> I plan to see them again. The quality of my life has never been
> better!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
> !!!!!!!!!
>
> May God Bless all those with MCL and the loving caregivers and families.

09/04/05

Permalink 10:59:08 pm, Categories: Hospital, 363 words   English (US)

'Chemo' Friends

A place to note some of the friends I've made on the 5th floor of HUMed:

Pedro. 74, Just starting RHyperCVAD in mid 10/05. Great attitude, excellent person - a great rooomate! Best to he and his family

Steve - MCL'er. 51, so he's close to my age - good barometer - and he's 1 cycle ahead of me (looks much younger than 51!). Doing the same protocol as me (R HyperCVAD) under the same doctor (Goy). Great parents (Murray and Barbara). He's taking well to the treatment too, tons of energy.

Mike - Renal (kidney) cancer. Great guy with a couple of really nice sons. Was my roomie for a few days on my first visit. Was having a tough time with his treatment, but they were going to back off and start again I believe. His older son is putting together a benefit concert that I'll have to post about.

xxx (patient) and xxx (husband) - B Cell Lymphoma. Really nice people, met them in Goy's office, and she's here during some of my stays. Having good days and bad days. Should be finishing treatment soon (as of 9/05).

Linda (wife) and her husband - patient. He had a mild heart attach while bike riding, while he was undergoing chemo (they're a bit older than myself, but makes you think you still need to watch it - i wear my heart monitor religiously when excercising). Linda's a trooper and incredibly upbeat and friendly despite the issues at hand.

Also found out one of my client friends from work's mother just battled a B Cell Lymphoma - using R-CHOP. She had a tough time, but she's got good support and will do well.

Our thoughts and prayers are with all of these fine people.

It's funny, Lance (Armstrong) writes that he now considers himself part of the cancer community, and that's something that won't go away. It's a weird feeling, you see someone on the floor, and it's like - "what are you in for?" - i.e. what do you have. You learn about theirs, they about yours, etc. Seeing others with shaved/bald heads when you're at the hospital means a bit more than when at home - you usually know what it's for (not a fashion statement).

Personal Notes

Personal notes for us to remember things in the hospital, etc.

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