Fighting Mantle Cell Lymphoma(All Posts)

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Hey John,

I~m a fellow MCL patient from Brazil and I would like to say that since I found out about my condition I started following your blog (aug/2008 that was).
Since that, I did all the chemo like you did (exactly the same protocol)and also a bone marrow transplant. I just did my 1 year check and everything is perfect. I would like to exchange some experiences with you (if you feel like that, of course) because there are always things to talk about that are interesting, like new treatments, nutrition and so forth. Also, would like to say that your blog always served to reasure myself that it was possible to get cured and live a normal life again! Thanks!
Caio


From John (8/20/10):
Caio,
Great news on your treatment and success! The bone marrow transplant must have been challenging - but certainly has some excellent results. I'll contact you offline, but am certainly open to discussion, as I think there's real benefit in that. I've not been as active on the various MCL forums - just need some time away from it I suppose - a bit of normalcy, but I agree there's benefit to keeping aware. And many thanks on the kind words; as you can imagine, that's incredibly humbling to hear, and extremely rewarding.

Best,
John

You sound like your doctor is very good. Is he out of Hackensack Univercity in NJ? If he is I hope he is in my plan as my doctor doesn't answer much of anything. Do you think I can ask for a copy of the CT/PET I am going for tomorrow? Thanks so much

You sound like your doctor is very good. Is he out of Hackensack Univercity in NJ? If he is I hope he is in my plan as my doctor doesn't answer much of anything. Do you think I can ask for a copy of the CT/PET I am going for tomorrow? Thanks so much

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